- Australian Cystinosis Support Group - Provides information and support for families and friends living with Cystinosis.
- Cystinosis - Cystinosis is a lysosomal storage disease characterized by the abnormal accumulation of the amino acid cystine.
- Cystinosis Research Foundation - This site offers information on cystinosis causes, prevention, symptoms and treatment of the cystinosis.
- Cystinosis Research Network - Providing family assistance and educating the public and medical communities about Cystinosis.
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