- Proteus Syndrome - Proteus Syndrome is a congenital disorder that causes skin overgrowth and atypical bone development.
- Proteus Syndrome Foundation - Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.
- Proteus Syndrome Foundation UK - Educates families and professionals and to raise money for research to find a cure for individuals living with proteus syndrome.
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