- American Porphyria Foundation - A non-profit organization dedicated to the health and well-being of individuals and families affected by porphyria.
- British Porphyria Association - UK support organisation for people with Porphyria.
- European Porphyria Initiative - Provides information and support to families affected by porphyria, and to support and encourage medical research.
- Porphyria - Porphyrias are a group of inherited or acquired disorders of certain enzymes in the heme bio-synthetic pathway.
- Porphyria: MedlinePlus - Porphyrias are a group of genetic disorders caused by problems with how your body makes a substance called heme.
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