CdLS Foundation - Promotes research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS.
https://www.cdlsusa.org/
Cornelia de Lange Syndrome - Cornelia de Lange Syndrome aka CdLS is a genetic disorder that can lead to severe developmental anomalies.
https://en.wikipedia.org/wiki/Cornelia_de_Lange_Syndrome